Life Goes On

Sorry I went AWOL on my blog for a few days.

As it turns out, producing a weekend long campout in the mountains AND dealing with your son’s upcoming neurosurgery simultaneously has made it challenging to blog on a regular basis.

Rest assured I will make every attempt to keep up with the flow.

My son had a CT scan yesterday that took 4 hours.

Why did it take 4 hours?

Because the Radiologist had to be consulted to make sure the right test was run.

Something that COULD have been figured out AHEAD OF TIME, but at least they were cautious.

The CT scan was done for the sole purpose of seeing how much of my son’s skull is compromised by the dermoid cyst.

As I’ve said earlier, my son needs to have a portion of his skull taken out in order to fully remove the cyst so it won’t grow back.

I appreciate that the doctors are insistent that we run all the necessary tests so that they know what they’re dealing with BEFORE they cut.

So there you have it in a nutshell.

The latest and greatest in my life.

Oh, and today is my oldest son’s 19th birthday!

So there will some celebrating despite the stress I’m under.

Life goes on.

And so will this blog.

Update on my son

Here’s the latest on my son.

He has what appears to be a benign dermoid cyst, a saclike growth present at birth.

No big deal.

The problem with his cyst is that it’s compromising his skull.

Meaning a portion of his skull will need to be removed with the cyst by a neurosurgeon.

According to the pediatric surgeon, this is a challenging surgery because

  • The cyst is on the back of his head which means he has to be operated on facing down, always considered a riskier surgery.
  • It’s also considered a high blood loss surgery (so family and friends may need to donate blood for him).
  • There’s always the risk of infection (gah!).

I am personally more than a little freaked out about this.

I looked up dermoid cyst on the internet and found out it’s a type of teratoma (a tumor made up of several different types of tissue).

A sacrococcogeal teratoma is exactly what caused the death of my son Douglas way back in 1998.

I don’t think I need to explain the fear that is coursing through my body right now at the thought of another teratoma threatening the well being of my child.

If you are the religious sort, please say a prayer for my son.

And if you are not religious, please send good energy and positive thoughts our way.

We’re doing better but we’re not out of the woods yet.

Prayers and good thoughts

Screen Shot 2015-10-28 at 12.35.04 PMSend your prayers and good thoughts my way today.

My son is going in for surgery.

He has a medical diagnosis of prognathism (aka underbite) and is having severe jaw problems because of it.

The poor boy is almost on a liquid diet right now because eating is so painful for him.

The usual treatment for prognathism involves breaking his jaw and piecing it back together in a more suitable position.

We’re hoping to avoid this with some corrective measures involving years of major orthodontia.

But before we can do that, he has to have some preliminary surgery taken care of.

So that’s what’s going on today.

He’s going under anesthesia so it’s a major procedure.

Please keep him (us) in your thoughts and prayers and hope for a speedy recovery.

Feel free to IM me, if you have my info (or I’ll just be sitting in the waiting room, S T R E S S I N G ! (And my ex husband will be there).

Love you all.

My glamorous life

The thing about living with someone who is blind but won’t admit it, is that accidents will happen.

And the thing about accidents is that you can come home from work to find a hand has been sliced open and your stubborn loved one (who is a board-certified physician) absolutely INSISTS that he possesses the ability to stitch it up himself. Only since he can’t see, YOU wind up jamming a needle and thread into his hand and stitching up the wound yourself amidst a puddle of blood.

I can now perform minor surgery.

My life is so glamorous.